Category: Researcher Perspective

First steps in development of core outcome set – ethical approval

By Natalie Cooper A key element of a core outcome set (COS) is patient and public involvement; after all, it is patients and their families who struggle and suffer from an illness, so who better to help us identify which

Posted in Core Outcome Set, Gynaecology, Researcher Perspective

Core Outcome Set for Hirschsprung’s Disease – The NETS1HD Study

By Benjamin Allin Edited by Ewelina Rogozińska Hirschsprung’s disease affects approximately 300-350 children in the UK each year and is caused by the failure of development of the nerves within the intestines. Affected children require an operation to remove part

Posted in Core Outcome Set, Researcher Perspective

Getting and keeping your stakeholders on board – tips from the “battle” ground

By Ewelina Rogozińska You passed the first stage, you have your protocol in place, you’ve gone through publications, extracted numerous outcomes and you are almost ready to send your polished survey around to all relevant stakeholders. But how to find

Posted in Researcher Perspective

A winding road to funding – story of a core outcome set for endometriosis trials

By Dr Martin Hirsch I was fresh faced and green behind the ears when I first heard about core outcome sets in 2013. Fast forward three years and I have been on a journey getting this, the first core outcome

Posted in Core Outcome Set, Endometriosis, Gynaecology, Researcher Perspective

Core outcomes in women’s health, a road map to better research

By Bassel H. Al Wattar Edited by Ewelina Rogozińska The last two decades have witnessed a major shift towards evidence-based medicine in clinical practice. Aiming to benefit patients and improve health outcomes, our investment in clinical research and its applicability

Posted in Core Outcome Set, Epilepsy in pregnancy, Researcher Perspective

Why I got involved in a core outcome set project? – researcher’s perspective

By Janneke van’t Hooft Edited by Ewelina Rogozińska Some questions require such large sample sizes that they cannot be answered unless primary data from multiple studies are combined. One example of such a situation is the use of preventive treatment

Posted in Core Outcome Set, preterm birth, Researcher Perspective